Beyond the Diagnosis - Folder and Chapter One - Birth to 3
"Beyond the diagnosis of Prader-Willi Syndrome, there is so much more. As a newly diagnosed parent of a child with PWS, it’s completely overwhelming. The amount of information available is confusing and difficult to navigate. However, the PWS beyond the Diagnosis information booklet is a resource that grows with your child and contains all the information you need to help you navigate your journey all in one neat package"
Although the information contained is relevant to all families, the links and resources mentioned are available in the state of Victoria. Australia and each state may have different programs and legislation or the resource may not be available.
This set includes the folder to hold this and any further chapters, a chapter divider, a zip pocket for safekeeping of items and a section to make notes of your own.
If you are a health or support service professional you will be issued with a receipt for tax deduction purposes.
All are welcome to become members of PWSA Vic at www.pwsavic.org.au